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E-patient

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Ane-patientis ahealth consumerwho participates fully in their ownmedical care,primarily by gathering information aboutmedical conditionsthat impact them and their families, using theInternetand other digital tools.[1]The term encompasses those who seek guidance for their own ailments, and the friends and family members who research on their behalf. E-patients report two effects of their health research: "better health information and services, and different, but not always better, relationships with their doctors."[2]

E-patients are active in their care and demonstrate the power of theparticipatory medicineorHealth 2.0/ Medicine 2.0.[3]model of care. The "e" can stand for "electronic"but has also been used to refer to other terms, such as" equipped "," enabled "," empowered "and" expert ".[4][5]

The current state of knowledge on the impact of e-patients on thehealthcare systemand the quality of care received indicates:

  • A growing number of people say the internet played a crucial or important role as they helped another person cope with a major illness.[6][7]
  • Manycliniciansunderestimated the benefits and overestimated the risks of online health resources for patients.[8][9][10]
  • Medical onlinesupport groupsare an important healthcare resource.[11]
  • "The net friendliness of clinicians and provider organizations—as rated by the e-patients they serve—is becoming an important new aspect ofhealth care quality."[12]
  • According to one study, the advent of patients as partners is one of the most important cultural medical revolutions of the past century.[12]
  • In order to understand the impact of the e-patient, clinicians will likely need to move beyond "pre-internet medical constructs".[12]
  • Medical educationmust adapt to take the e-patient into account, and to prepare students for medical practice that includes the e-patient.[1]

A 2011 study of European e-patients found that they tended to be "inquisitive and autonomous" and that they noted that the number of e-patients in Europe appeared to be rising.[13]A 2012 study found that e-patients uploading videos about their health experienced a loss of privacy, but also positive benefits fromsocial support.[14]A later 2017 study utilizingsocial network analysisfound that when e-patients are included in health care conferences, they increase information flow, expand propagation, and deepen engagement in the conversation oftweetswhen compared to bothphysiciansand researchers while only making up 1.4% of the stakeholder mix.[15]

Non-English translations and adaptations of "e-patient"

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Japan

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According to Maho Isono, PhD, at theInternational University of Health and WelfareinŌtawara,Japan, the term closest toe-patientin Japanese istojisha-kenkyu,where "kenkyumeans study, investigation and research "and"tojisharefers to interested persons,disabled personsthemselves or patients themselves. "[16]

Sweden

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Inspired by the seminal work on e-patients byTom Fergusonand the e-Patients Scholars Working Group,[17]Swedish patient and engineerSara Riggare[sv]coined a new Swedish word, "spetspatient",meaning" lead user patient "or" lead patient ", in February 2016.

See also

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References

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  1. ^abMasters, K.; Ng'Ambi, D.; Todd, G. (2010)."'I Found it on the Internet': Preparing for the e-patient in Oman ".Sultan Qaboos University Medical Journal.10(2): 169–179.PMC3074705.PMID21509226.
  2. ^"Fox, Susannah; Fallows, Deborah. 2003. Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access"(PDF).Archived fromthe original(PDF)on 2023-03-25.Retrieved2011-07-05.
  3. ^Eysenbach GMedicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness.J Med Internet Res 2008;10(3):e22
  4. ^Kevin Kruse."What do you mean, 'e-patient'?".Blog.kruresearch. Archived fromthe originalon 2013-08-25.Retrieved2013-09-13.
  5. ^Hewitt-Taylor, Jaqui; Bond, Carol S (8 November 2012)."What E-patients Want From the Doctor-Patient Relationship: Content Analysis of Posts on Discussion Boards"(PDF).Journal of Medical Internet Research.14(6): e155.doi:10.2196/jmir.2068.PMC3510709.PMID23137788.
  6. ^Finding Answers Online in Sickness and in Health, 5/2/2006, Pew InternetArchived2008-03-06 at theWayback Machine.
  7. ^Eysenbach G (2003). "The impact of the Internet on cancer outcomes".CA: A Cancer Journal for Clinicians.53(6): 356–71.CiteSeerX10.1.1.526.4309.doi:10.3322/canjclin.53.6.356.PMID15224975.S2CID10192148.
  8. ^Jacobson P (2007)."Empowering the physician-patient relationship: The effect of the Internet".Partnership: The Canadian Journal of Library and Information Practice and Research.2(1).doi:10.21083/partnership.v2i1.244.ISSN1911-9593.
  9. ^Ahmad F, Hudak PL, Bercovitz K, Hollenberg E, Levinson W (2006)."Are Physicians Ready for Patients With Internet-Based Health Information?".Journal of Medical Internet Research.8(3): e22.doi:10.2196/jmir.8.3.e22.PMC2018833.PMID17032638.
  10. ^Crocco AG, Villasis-Keever M, Jadad AR (June 2002)."Analysis of cases of harm associated with use of health information on the internet".JAMA.287(21): 2869–71.doi:10.1001/jama.287.21.2869.PMID12038937.
  11. ^Feder, Judith; Sands, Daniel Z. (2008-02-25)."A Reader and Author Respond to 'ePatients: Engaging Patients in Their Own Care'".Medscape Journal of Medicine.10(2): 46.ISSN1934-1997.PMC2270894.PMID18382715.
  12. ^abcFerguson, Tom; Frydman, Gilles (2004-05-15)."The First Generation of E-Patients: These New Medical Colleagues Could Provide Sustainable Healthcare Solutions".British Medical Journal.328(7449): 1148–1149.doi:10.1136/bmj.328.7449.1148.ISSN0959-8138.PMC411079.PMID15142894.
  13. ^Santana, Silvina; Lausen, Berthold; Bujnowska-Fedak, Maria; Chronaki, Catherine E.; Prokosch, Hans-Ulrich; Wynn, Rolf (2011-04-16)."Informed citizen and empowered citizen in health: results from an European survey".BMC Family Practice.12:20.doi:10.1186/1471-2296-12-20.ISSN1471-2296.PMC3101118.PMID21496309.
  14. ^Gómez-Zúñiga, Beni; Fernandez-Luque, Luis; Pousada, Modesta; Hernández-Encuentra, Eulàlia; Armayones, Manuel (2012-04-25)."ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective".Medicine 2.0.1(1): e1.doi:10.2196/med2.2039.ISSN1923-2195.PMC4084771.PMID25075229.
  15. ^Utengen, Audun; Rouholiman, Dara; Gamble, Jamison G; III, Francisco Jose Grajales; Pradhan, Nisha; Staley, Alicia C; Bernstein, Liza; Young, Sean D; Clauson, Kevin A (2017)."Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers".Journal of Medical Internet Research.19(8): e280.doi:10.2196/jmir.8049.PMC5579322.PMID28818821.
  16. ^Salmi, Liz; Brudnicki, Selina; Isono, Maho; Riggare, Sara; Rodriquez, Cecilia; Schaper, Louise K.; Walker, Jan; Delbanco, Tom (2020-09-01)."Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA".BMJ Open.10(9): e037016.doi:10.1136/bmjopen-2020-037016.ISSN2044-6055.PMC7493106.PMID32933961.
  17. ^Ferguson, Tom."e-patients: How they can help us heal health care"(PDF).
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