VIAF

Virtual International Authority File

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Leader     00000nz a2200037n 45 0
001     WKP|Q56487298  (VIAF cluster)  (Authority/Source Record)
003     WKP
005     20241121000042.0
008     241121nneanz||abbn n and d
035 ‎‡a  (WKP)Q56487298‏
024 ‎‡a  0000-0001-7192-2633‏ ‎‡2  orcid‏
035 ‎‡a  (OCoLC)Q56487298‏
100 0 ‎‡a  Jantina de Vries‏ ‎‡c  researcher ORCID: 0000-0001-7192-2633‏ ‎‡9  en‏
375 ‎‡a  2‏ ‎‡2  iso5218‏
400 0 ‎‡a  Jantina de Vries‏ ‎‡c  wetenschapper‏ ‎‡9  nl‏
670 ‎‡a  Author's Accessing Biospecimens from the H3Africa Consortium.‏
670 ‎‡a  Author's Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries‏
670 ‎‡a  Author's Community engagement in global health research that advances health equity‏
670 ‎‡a  Author's Community engagement strategies for genomic studies in Africa: a review of the literature‏
670 ‎‡a  Author's Consent insufficient for data release‏
670 ‎‡a  Author's Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope.‏
670 ‎‡a  Author's Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)‏
670 ‎‡a  Author's Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers‏
670 ‎‡a  Author's Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report‏
670 ‎‡a  Author's Ethical challenges in community engagement practices in research during the COVID-19 pandemic in Africa‏
670 ‎‡a  Author's Ethical Challenges in Contemporary FASD Research and Practice‏
670 ‎‡a  Author's Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa.‏
670 ‎‡a  Author's Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees‏
670 ‎‡a  Author's Ethical, legal and social issues in the context of the planning stages of the Southern African Human Genome Programme.‏
670 ‎‡a  Author's Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study‏
670 ‎‡a  Author's Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa‏
670 ‎‡a  Author's Global citizen deliberation on genome editing‏
670 ‎‡a  Author's H3Africa: current perspectives.‏
670 ‎‡a  Author's "I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa‏
670 ‎‡a  Author's Implications of direct-to-consumer whole-exome sequencing in South Africa.‏
670 ‎‡a  Author's Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?‏
670 ‎‡a  Author's "It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use‏
670 ‎‡a  Author's Model framework for governance of genomic research and biobanking in Africa – a content description‏
670 ‎‡a  Author's Policy makers, regulators and researchers’ perspectives on genomics research and the capacity of the National Health Research Act of 2013 to regulate genomics research in Zambia‏
670 ‎‡a  Author's Potential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic risk‏
670 ‎‡a  Author's Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study.‏
670 ‎‡a  Author's Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research‏
670 ‎‡a  Author's Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.‏
670 ‎‡a  Author's Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries‏
670 ‎‡a  Author's Research capacity. Enabling the genomic revolution in Africa‏
670 ‎‡a  Author's Research priorities. ELSI 2.0 for genomics and society‏
670 ‎‡a  Author's Returning incidental findings in African genomics research‏
670 ‎‡a  Author's Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.‏
670 ‎‡a  Author's The NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South Africa‏
670 ‎‡a  Author's The obesity epidemic: medical and ethical considerations‏
670 ‎‡a  Author's The Path Forward for DNA Data‏
670 ‎‡a  Author's Toward better governance of human genomic data‏
670 ‎‡a  Author's Would you terminate a pregnancy affected by sickle cell disease? Analysis of views of patients in Cameroon‏
909 ‎‡a  (orcid) 0000000171922633‏ ‎‡9  1‏
912 ‎‡a  researchcapacityenablingthegenomicrevolutioninafrica‏ ‎‡A  Research capacity. Enabling the genomic revolution in Africa‏ ‎‡9  1‏
919 ‎‡a  deliberationtopromotesharedsovereigntyinhealthresearch4questionstoclarifygoalsmethodsandscope‏ ‎‡A  Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope.‏ ‎‡9  1‏
919 ‎‡a  editorialanideawhosetimehascomeanafricanforesightobservatoryongenomicsmedicineanddataintensiveglobalscience‏ ‎‡A  Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)‏ ‎‡9  1‏
919 ‎‡a  equityininternationalhealthresearchcollaborationsinafricaperceptionsandexpectationsofafricanresearchers‏ ‎‡A  Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers‏ ‎‡9  1‏
919 ‎‡a  ethicalandpracticalissuestoconsiderinthegovernanceofgenomicandhumanresearchdataanddatasharinginsouthafricaameetingreport‏ ‎‡A  Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report‏ ‎‡9  1‏
919 ‎‡a  genomicsovereigntyandtheafricanpromiseminingtheafricangenomeforthebenefitofafrica‏ ‎‡A  Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa‏ ‎‡9  1‏
919 ‎‡a  globalcitizendeliberationongenomeediting‏ ‎‡A  Global citizen deliberation on genome editing‏ ‎‡9  1‏
919 ‎‡a  h3africacurrentperspectives‏ ‎‡A  H3Africa: current perspectives.‏ ‎‡9  1‏
919 ‎‡a  passedthetestevidenceofdiagnosticmisconceptionintherecruitmentofpopulationcontrolsforanh3africagenomicstudyincapetownsouthafrica‏ ‎‡A  "I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa‏ ‎‡9  1‏
919 ‎‡a  implicationsofdirecttoconsumerwholeexomesequencinginsouthafrica‏ ‎‡A  Implications of direct-to-consumer whole-exome sequencing in South Africa.‏ ‎‡9  1‏
919 ‎‡a  investigatingthepotentialforethnicgroupharmincollaborativegenomicsresearchinafricaisethnicstigmatisationlikely‏ ‎‡A  Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?‏ ‎‡9  1‏
919 ‎‡a  itsforagoodcauseisntitexploringviewsofsouthafricantbresearchparticipantsonsamplestorageandreuse‏ ‎‡A  "It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use‏ ‎‡9  1‏
919 ‎‡a  modelframeworkforgovernanceofgenomicresearchandbiobankinginafricaacontentdescription‏ ‎‡A  Model framework for governance of genomic research and biobanking in Africa – a content description‏ ‎‡9  1‏
919 ‎‡a  policymakersregulatorsandresearchersperspectivesongenomicsresearchandthecapacityofthenationalhealthresearchactof2013toregulategenomicsresearchinzambia‏ ‎‡A  Policy makers, regulators and researchers’ perspectives on genomics research and the capacity of the National Health Research Act of 2013 to regulate genomics research in Zambia‏ ‎‡9  1‏
919 ‎‡a  potentialuseofclinicalpolygenicriskscoresinpsychiatryethicalimplicationsandcommunicatinghighpolygenicrisk‏ ‎‡A  Potential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic risk‏ ‎‡9  1‏
919 ‎‡a  predictorsofconsenttocelllinecreationandimmortalisationinasouthafricanschizophreniagenomicsstudy‏ ‎‡A  Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study.‏ ‎‡9  1‏
919 ‎‡a  providingapolicyframeworkforresponsiblegenedriveresearchananalysisoftheexistinggovernancelandscapeandpriorityareasforfurtherresearch‏ ‎‡A  Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research‏ ‎‡9  1‏
919 ‎‡a  exploringresearchersexperiencesofworkingwitharesearcherdrivenpopulationspecificcommunityadvisoryboardinasouthafricanschizophreniagenomicsstudy‏ ‎‡A  Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study‏ ‎‡9  1‏
919 ‎‡a  psychiatricgenomicsethicalimplicationsforpublichealthinlowerandmiddleincomecountries‏ ‎‡A  Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.‏ ‎‡9  1‏
919 ‎‡a  regulationofgenomicandbiobankingresearchinafricaacontentanalysisofethicsguidelinespoliciesandproceduresfrom22africancountries‏ ‎‡A  Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries‏ ‎‡9  1‏
919 ‎‡a  towardbettergovernanceofhumangenomicdata‏ ‎‡A  Toward better governance of human genomic data‏ ‎‡9  1‏
919 ‎‡a  ethicallegalandsocialissuesinthecontextoftheplanningstagesofthesouthernafricanhumangenomeprogramme‏ ‎‡A  Ethical, legal and social issues in the context of the planning stages of the Southern African Human Genome Programme.‏ ‎‡9  1‏
919 ‎‡a  wouldyouterminateapregnancyaffectedbysicklecelldiseaseanalysisofviewsofpatientsincameroon‏ ‎‡A  Would you terminate a pregnancy affected by sickle cell disease? Analysis of views of patients in Cameroon‏ ‎‡9  1‏
919 ‎‡a  ethicalissuesingenomicresearchontheafricancontinentexperiencesandchallengestoethicsreviewcommittees‏ ‎‡A  Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees‏ ‎‡9  1‏
919 ‎‡a  ethicalconsiderationsinforensicgeneticsresearchontissuesamplescollectedpostmortemincapetownsouthafrica‏ ‎‡A  Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa.‏ ‎‡9  1‏
919 ‎‡a  ethicalchallengesincontemporaryfasdresearchandpractice‏ ‎‡A  Ethical Challenges in Contemporary FASD Research and Practice‏ ‎‡9  1‏
919 ‎‡a  pathforwardfordnadata‏ ‎‡A  The Path Forward for DNA Data‏ ‎‡9  1‏
919 ‎‡a  ethicalchallengesincommunityengagementpracticesinresearchduringthecovid19pandemicinafrica‏ ‎‡A  Ethical challenges in community engagement practices in research during the COVID-19 pandemic in Africa‏ ‎‡9  1‏
919 ‎‡a  researchprioritieselsi20forgenomicsandsociety‏ ‎‡A  Research priorities. ELSI 2.0 for genomics and society‏ ‎‡9  1‏
919 ‎‡a  returningincidentalfindingsinafricangenomicsresearch‏ ‎‡A  Returning incidental findings in African genomics research‏ ‎‡9  1‏
919 ‎‡a  seekingconsenttogeneticandgenomicresearchinaruralghanaiansettingaqualitativestudyofthemalariagenexperience‏ ‎‡A  Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.‏ ‎‡9  1‏
919 ‎‡a  neurodevstudyphenotypicandgeneticcharacterizationofneurodevelopmentaldisordersinkenyaandsouthafrica‏ ‎‡A  The NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South Africa‏ ‎‡9  1‏
919 ‎‡a  accessingbiospecimensfromtheh3africaconsortium‏ ‎‡A  Accessing Biospecimens from the H3Africa Consortium.‏ ‎‡9  1‏
919 ‎‡a  obesityepidemicmedicalandethicalconsiderations‏ ‎‡A  The obesity epidemic: medical and ethical considerations‏ ‎‡9  1‏
919 ‎‡a  broadconsentforgenomicresearchandbiobankingperspectivesfromlowandmiddleincomecountries‏ ‎‡A  Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries‏ ‎‡9  1‏
919 ‎‡a  communityengagementinglobalhealthresearchthatadvanceshealthequity‏ ‎‡A  Community engagement in global health research that advances health equity‏ ‎‡9  1‏
919 ‎‡a  communityengagementstrategiesforgenomicstudiesinafricaareviewoftheliterature‏ ‎‡A  Community engagement strategies for genomic studies in Africa: a review of the literature‏ ‎‡9  1‏
919 ‎‡a  consentinsufficientfordatarelease‏ ‎‡A  Consent insufficient for data release‏ ‎‡9  1‏
946 ‎‡a  a‏ ‎‡9  1‏
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